Quality of life in Children with Cerebral Palsy

QoL in Children with Cerebral Palsy

Authors

  • Sidra Hanif Ibadat International University, Islamabad, Pakistan
  • Arooj Zameer University of Lahore, Islamabad Campus, Islamabad, Pakistan
  • Hamra Waheed University of Lahore, Islamabad Campus, Islamabad, Pakistan
  • Faryal Zaidi Ibadat International University, Islamabad, Pakistan
  • Ishaq Ahmed Ibadat International University, Islamabad, Pakistan
  • Maham Choudary University of Lahore, Islamabad Campus, Islamabad, Pakistan

DOI:

https://doi.org/10.54393/pjhs.v4i09.1042

Keywords:

Cerebral Palsy, Quality of life, Diplegic CP, Hemiplegic CP

Abstract

Cerebral palsy refers to a non-progressive brain disorder that affects the development of brain in developing infant and reduces the quality of life. Quality of life (QOL) is assessed using the CPQOL tool. Objectives: To assess the quality of life of children with CP. Methods: A cross-sectional study was conducted at the National Institute of Rehabilitation Medicine, Islamabad during Oct-2022 to Mar-2023. The sample was raised using slovin’s formula and non-probability convenient sampling technique was used. Data were collected using standard CP-QOL tool. All types of CP diagnosed cases both gender, presence of a caregiver and an age range of 4 to 12 years were included. Patients with non-availability of a caregiver and presence of any other illness not associated with CP were excluded. Results: Out of 129 participants, 105 were included on the basis of inclusion and exclusion criteria. The mean ± SD of patients overall score came out to be 46.83 ±9.75. CPQOL score of males were 47.36±9.96 and of female was 46.19±9.56. CPQOL score of age 4-6years was 45.12±10.58, 7-9 years was 47.70±9.15 and 10-12 years was 49.21±8.54 while overall CPQOL score of children with diplegic CP was 48.38±9.11, hemiplegic CP was 48.66±7.74, quadriplegic CP was 37.92±11.16. Conclusions: study showed that among both genders, females had poor QoL than males. This study also concluded that quadriplegic children had poor QoL than any other types of cerebral palsy. The overall status of QoL of children having Cerebral Palsy was low.

References

Baseer A, Majeed A, Nazir A, Khawar R. Exploring the Home and School Based Strategies For Children With Cerebral Palsy: A Phenomenological Study. Journal of Pakistan Psychiatric Society. 2022 Oct; 19(02): 16-21.

Izzah AN, Irwanto I, Andriati A, Gunawan PI. Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years. Jurnal Berkala Epidemiologi. 2021 May; 9(2): 166-74. doi: 10.20473/jbe.V9I22021.166-174. DOI: https://doi.org/10.20473/jbe.V9I22021.166-174

Sadowska M, Sarecka-Hujar B, Kopyta I. Cerebral palsy: current opinions on definition, epidemiology, risk factors, classification and treatment options. Neuropsychiatric Disease and Treatment. 2020 Jun: 1505-18. doi: 10.2147/NDT.S235165. DOI: https://doi.org/10.2147/NDT.S235165

Vova J. Cerebral Palsy: An Overview of Etiology, Types and Comorbidities. OBM Neurobiology. 2022 Apr; 6(2): 1-25. doi: 10.21926/obm.neurobiol.2202120. DOI: https://doi.org/10.21926/obm.neurobiol.2202120

Ferreira MC, Garcia NR, Prudente CO, Ribeiro MF. Quality of life of adolescents with cerebral palsy: agreement between self-report and caregiver’s report. Revista Latino-Americana de Enfermagem. 2020 Jul; 28. doi: 10.1590/1518-8345.3928.3300. DOI: https://doi.org/10.1590/1518-8345.3928.3300

Radsel A, Osredkar D, Neubauer D. Health-related quality of life in children and adolescents with cerebral palsy. Slovenian Journal of Public Health. 2019; 56(1): 1-10. doi: 10.1515/sjph-2017-0001. DOI: https://doi.org/10.1515/sjph-2017-0001

Bhattacharjee S. A Review on the Types, Risk Factors, Diagnosis, and Treatment of Cerebral Palsy. Indian Journal of Physical Medicine & Rehabilitation. 2020 Oct; 31(4): 97. doi: 10.5005/jp-journals-10066-0088. DOI: https://doi.org/10.5005/jp-journals-10066-0088

Patel DR, Neelakantan M, Pandher K, Merrick J. Cerebral palsy in children: a clinical overview. Translational Pediatrics. 2020 Feb; 9(1): 125. doi: 10.21037/tp.2020.01.01. DOI: https://doi.org/10.21037/tp.2020.01.01

El Sayed S, Gomaa S, Shokry D, Kabil A, Eissa A. Sleep in post-COVID-19 recovery period and its impact on different domains of quality of life. The Egyptian Journal of Neurology, Psychiatry and Neurosurgery. 2021 Dec; 57: 1-10. doi: 10.1186/s41983-021-00429-7. DOI: https://doi.org/10.1186/s41983-021-00429-7

Lewicka M and Kurylak A. Assessment of quality of life in patients with cerebral palsy. Pediatria Polska. 2019; 94(2): 119-27. doi: 10.5114/polp.2019.85041. DOI: https://doi.org/10.5114/polp.2019.85041

Vadivelan K, and Sekar P. Assessment of proxy quality of life in children with cerebral palsy: a cross-sectional study. Pediatria Polska-Polish Journal of Paediatrics. 2021; 95(4): 212-5. doi: 10.5114/polp.2020.103497.

Al-Mosawi AJ. The pattern of cerebral palsy in Iraqi children. MedLife Clinics. 2019 Aug; 1(1): 1001.

Sarvinoz T and Muzaffar Z. Rehabilitation for childhood cerebral palsy. Uzbek Scholar Journal. 2022 Jul; 6: 97-101.

Graham D, Paget SP, Wimalasundera N. Current thinking in the health care management of children with cerebral palsy. Medical Journal of Australia. 2019 Feb; 210(3): 129-35. doi: 10.5694/mja2.12106 DOI: https://doi.org/10.5694/mja2.12106

Paul S, Nahar A, Bhagawati M, Kunwar AJ. A review on recent advances of cerebral palsy. Oxidative Medicine and Cellular longevity. 2022 Jul; 2022. doi: 10.1155/2022/2622310. DOI: https://doi.org/10.1155/2022/2622310

Sarvinoz T and Muzaffar Z. Rehabilitation for childhood cerebral palsy. Uzbek Scholar Journal. 2022 Jul; 6: 97-101.

Jindal P, Macdermid JC, Rosenbaum P, Direzze B, Narayan A, Nayak SL. Treatment and re/habilitation of children with cerebral palsy in India: a scoping review. Developmental Medicine & Child Neurology. 2019 Sep; 61(9): 1050-60. doi.org/10.1111/dmcn.14211. DOI: https://doi.org/10.1111/dmcn.14211

Islam MM, Sultana A, Hossain MZ, Jahan S. Health Related Quality of Life of Children with Cerebral Palsy among 3-12 Years Old. European Journal of Medical and Health Sciences. 2022 Oct; 4(5): 105-8. doi: 10.24018/ejmed.2022.4.5.1388. DOI: https://doi.org/10.24018/ejmed.2022.4.5.1388

Badia M, Orgaz MB, Riquelme I, Gómez-Iruretagoyena J. Domains of the Cerebral Palsy Quality of Life Questionnaire (CP QOL) for Children and Adolescents: Spanish Adaptation and Psychometric Properties. Journal of Developmental and Physical Disabilities. 2020; 33(3): 331-49. doi: 10.1007/s10882-020-09751-z. DOI: https://doi.org/10.1007/s10882-020-09751-z

Vadivelan K and Sekar P. Assessment of proxy quality of life in children with cerebral palsy: a cross-sectional study. Pediatria Polska. 2020; 95(4): 212-5. doi: 10.5114/polp.2020.103497. DOI: https://doi.org/10.5114/polp.2020.103497

Abd Elmagid DS, Magdy H. Evaluation of risk factors for cerebral palsy. The Egyptian Journal of Neurology, Psychiatry and Neurosurgery. 2021 Dec; 57: 1-9. doi: 10.1186/s41983-020-00265-1. DOI: https://doi.org/10.1186/s41983-020-00265-1

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Published

2023-09-30
CITATION
DOI: 10.54393/pjhs.v4i09.1042
Published: 2023-09-30

How to Cite

Hanif, S. ., Zameer, A. ., Waheed, H., Zaidi, F., Ahmed, I., & Choudary, M. (2023). Quality of life in Children with Cerebral Palsy: QoL in Children with Cerebral Palsy. Pakistan Journal of Health Sciences, 4(09), 70–74. https://doi.org/10.54393/pjhs.v4i09.1042

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